|
"I
don't want my mom to think I am giving up on her."
"My
mom is too sick to tell me what she wants, and now I
have to make the decisions for her. I don't know what
to do."
"My
brothers and I disagree about dad's care. They think
we should do absolutely everything, but I don't think
dad wants that."
Discussions
about care wishes during the end of a life often take
place in the hallway of the hospital in the midst of
a crisis. Decisions for end-of-life care are made under
incredible stress. Unfortunately, family members may
be making their "best guess" about what a loved one
would want for end-of-life care, having never discussed
their desires in advance.
"I
feel uncomfortable bringing up the topic with my parents."
Conversations
about our desires for end-of-life care are very uncomfortable
for all of us. We are reluctant to think about our own
mortality, and that of our loved ones. Frankly, it hurts
to think about it. We feel grief and sadness when we
contemplate life without that special person, even if
they are with us and healthy.
That
fear and sadness is normal.
Avoiding
the conversation is our way of protecting ourselves
from pain. However, avoiding the conversation when we
can so easily have it only postpones the issue, and
actually makes it harder on us when we are faced with
making care decisions and are unable to have a discussion.
|