Caregiving
Palliative Care Resources for Hawai‘i compiled by Kokua Mau
• Quick link to Hospices and Palliative Care providers with phone numbers
Please note: These lists were compiled and updated by Kokua Mau as a community service in August 2011. Please call the number listed to find out details about the specific group or program, as time and personnel can change. We need your help to maintain these lists and ask you to send any additions or edits to us at info@kokuamau.org. Thank you.
• Download the PDF file (two pages) of key palliative care resources for Hawai‘i
What is Palliative Care?
Palliative care is specialized medical care for people with serious illnesses. This type of care is focused on providing patients with relief from the symptoms, pain, and stress of a serious illness - whatever the diagnosis.
The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a team of doctors, nurses, and other specialists who work with a patient's other doctors to provide an extra layer of support. Palliative care is appropriate at any age and at any stage in a serious illness, and can be provided together with curative treatment. Definition in 2011 by the Center to Advance Palliative Care (CAPC)
What is Hospice Care?
Hospice is a type of palliative care offered in the last six months of life and focuses on caring, not curing. In most cases, care is provided in the patient's home by an interdisciplinary team but also provided in in-patient and long-term care facilities. Hospice is covered under Medicare, Medicaid, and most private insurance plans and is provided on all islands.
Quick link to Hospices and Palliative Care providers with phone numbers
Palliative care covers a variety of services helping to relieve suffering, offer choices and provide support. These lists cover resources across the palliative care continuum. To keep these as up to date as possible, we have provided you with pdf files that are easy to print and for example put in a binder.
Please click on the topic to access the PDF file or web page with the list of resources
Two-Page Sheet: Key Palliative Care & Hospice Resources for Hawai‘i
Advance Directive
POLST (Physician's Orders for Life-Sustaining Treatment) is a physician's order that gives patients more control over their end-of-life care. More information here
Grief and Bereavement Support (pdf 11 pages): The Bereavement Network of Hawaii maintains a comprehensive, constatly updated list of support groups and services in Hawai‘i.
Overnight Respite (pdf 2 pages): Out of home overnight care facilities provide non-medical care for frail seniors in need of supervision, personal services, protection, assistance and guidance.
In Home Respite (pdf 3 pages): Temporary relief for caregivers provided in the home.
Other Respite Services (pdf 6 pages): This section lists other providers of temporary relief for caregivers, including overnight stays in facilities, in-home assistance, and may include housekeeping, shopping, and errands. Home health agencies provide skilled nursing services and other therapeutic services ordered by a physician to homebound patients.
Adult Day Care & Day Health (pdf 6 pages): Provides care outside the home. Participants have the opportunity to interact with others while being part of a safe and structured environment.
Support Groups in Hawaii (pdf 7 pages): Support groups on all islands for a variety of health issues, including those witha caregiver focus. Call for meeting details.
Cancer Support Groups in Hawaii (pdf 5 pages): Covers all islands. Call for meeting details.
Family History Compilers (pdf 2 pages): Create a visual personal biography and preserve your family mementos using photos and film.
Materials
Kokua Mau has a variety of helpful materials, including booklets for caregivers, advance directives, DVDs and other information. You can order the materials directly from Kokua Mau.
Caregiver Coalition
Hawaii has an excellent Family Caregiver Coalition. Please contact wes.lum@doh.hawaii.gov for more information or to be added to their mailing list.
Other Web Resources for Caregivers:
Please consult these Hawaii focused resources:
Other Resources
Hā Kūpuna
Hā Kūpuna, the National Resource Center for Native Hawaiian Elders, is one of three National Resource Centers for Native Elders funded by the U.S. Administration on Aging, Department of Health and Human Services.
University of Hawai‘i Center on Aging
The health and quality of life of older adults is a vital concern in this changing demographic and economic climate. To enhance the well-being of older adults, the University of Hawai‘i Center on Aging is committed to interdisciplinary and collaborative efforts in research, educational programs and service to the community.
Hawaii Community Caregiver Network
Hawaii Pacific Gerontological Societ
Organized in 1979, the Hawaii Pacific Gerontological Society (HPGS) is a nonprofit organization dedicated to improving the quality of life of Hawaii’s older adults
Note: These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the Kokua Mau of any of the products, services or opinions of the corporation, organization or individual. Kokua Mau bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.